| Old Age
Policies

The former Ministry of
Health and Social Care since long is divided, the present
formula being a Ministry of Health and a Ministry of
Solidarity and Social Security. The last one, besides a
Secretary of State for Social Security, who administers the
National Pensions Fund, also has a Secretary of State for
Social Insertion upon which depends a newly formed National
Council for the Third Age Policy. Standing at a national
level, this is the one and only element for co-ordination
between health and social care.
Until recently the general policy trend could
be said to be keeping the patient as much as possible within
its family… and whenever impossible send him to old asylums
where quality of care is questionable and motivated
professionals are hard to find [22]. But if it can be defensible
to consider as a priority to keep old people living in their
own usual environment, circumstances to implement such a
policy must be clearly established under penalty of mere
concealment for the adoption of the immediately cheaper
solutions. And that clarification doesn’t really exist as one
can infer from the lack of domiciliary support outside the
main urban areas (determined by budget limitations), or from
the non-existent formation for informal carers, or still more
and conclusively from the conjure of the serious problem of
the high-dependency elderly. For these not only there is no
policy for the creation and support of residencies, as there
is no efficient system for the surveillance of the few public
and private (profit and non-profit - Mercy Homes -) that
already exist. Besides there are no objective criteria
established for the admission of the aged in need at those
homes, be it through social, psychological and/or physical
frailty indexes.
Alzheimer's disease and
other related conditions
This is the old age contextual scenery that
leads us to conclude for the almost absolute non-existence of
any measures specifically intended to the health and social
care problems associated with Alzheimer's disease and other
neuro-degenerative conditions.
In the absence of such an integrated and
specifically tailored policy, the framework of these
conditions is consequently forwarded to the scope of the
general measures regarding the old age support, on one side,
the ill-person and/or handicapped, on another, or, finally,
for their families.
Nevertheless, according with the prospects of
some epidemiological studies, figures reporting the Portuguese
situation probably will not be far from what has been reported
in other countries: overall prevalence of about 4.3% for the
cases of moderate to severe dementia among the population aged
65 years and over. Among those, and accounting for 3.3%, are
the degenerative situations of the Alzheimer's type. The
annual incidence of new cases is thought of as about 9.2
persons in 1000 at risk, 6.3 of which of degenerative type and
the remaining of vascular, alcoholic and other aetiologies.
Therefore, for the Portuguese population, these will result in
60 thousand demented ones, 45 thousand of which probably of
the Alzheimer's type. And this number has a clearly
established tendency to increase with the population at risk;
even because it is estimated that the mortality rate is lower
than the number of new cases: 12500 each year, 8500 of which
from Alzheimer's type. These figures, along with the absence
of any measures that could be thought of as a result from a
credible integrated project, more than a huge and shameful
discrepancy towards the other members of Economic Union, allow
foreseeing a real catastrophic situation. However disparities
go further and if we consider separately what happens with the
population living outside the main urban areas, in some ways
this totally uncontrolled situation is not very far from what
they already have.
Legislation
In Portugal there is no specific legislation
concerning Alzheimer's disease by itself, thus applying to
this situation the general legal measures regarding support
for the handicapped, and in this situation with a handicap of
60% or more (according with the 1993 National Chart of
Disabilities [23]). Dating back to 1989, the legal definition
of handicapped person is as follows: "The one that, by
means of a loss or deficiency, congenital or acquired,
structural or functional, psychological, intellectual,
physiological or anatomical, capable of resulting in capacity
restrictions, can be regarded as in situations of disadvantage
for the practice of activities considered as normal, having
into account the age, the sex and the dominant socio-cultural
factors." [24]
However, we have to go further back to 1979
to find for the first time in Portugal a system that
guarantees a minimal social protection to all citizens beyond
Providence contributors. Shortly after, although keeping all
benefits, another legal measure comes to restrain those
benefits to the really needed individuals. Under this
framework it is then implemented a sharing regimen of Social
Security from which Pensions stand out. And in the particular
case of the Alzheimer's patient, we may point out the Disability Allowance [25], the Subsidy for the Carer of A Third
Person [26] also known as the
Major Handicap Subsidy and
the Complement for Consort in
Charge [27].
The Disability
Allowance [25] accounted for
189,000,000 thousand PTE of the 1996 budget [19]. It consists in a fixed instalment (30,100 PTE
minimum), annually actualised, intended to compensate those
who cannot carry out their profession due to a permanent
disablement. Not necessarily total, disability implies a
permanent physical or mental incapacity that prevents the
beneficiary from gaining more than 1/3 of the remuneration
corresponding to the practice of his profession under normal
conditions. Eligible to the Disability Allowance are those (1)
who suffer from a permanent incapacity to work, meaning that
it is presumable that, in the three years to follow, they wont
recover their capacities to the point of being able to perform
their profession in order to get paid in at least 50%. And (2)
who have rendered their contributions to social security for
at least five years (in a row or interpolated) with a record
of at least 120 days of wages each year - guarantee period -.
For purposes of calculation as well as to establish the
incapacity, the attribution of the Disability Allowance is
referenced to the last profession of the beneficiary. If there
is more than one profession, it should be considered the
better paid. Old age pension may be accumulated with other
pensions and even with other optional regimens for social
protection.
The Subsidy for the
Carer of A Third Person [26] accounted for 340,000 thousand PTE of the 1996
budget [19]. Presently with an
amount of 10,460 PTE, this subsidy is assured to the
pensioners who are in a dependency situation. Meaning that are
entitled to this Subsidy for the Carer of A Third Person those
who are in permanent need of support from someone else to help
them to accomplish common daily tasks such as personal
hygiene, locomotion or feeding. The permanent need of support
has to be shown and implies a daily attendance of at least 6
hours. For legal purposes carers are considered the relatives
or anyone else who helps the dependent person, here including
the so-called domiciliary support. Pensioners may not claim
this subsidy if help is rendered in a context of official or
private health or social support facilities in any way
financed by some sort of public funding. If the pensioner
already gets some money for that purpose, this subsidy will
only apply if the amount he gets is smaller than the subsidy;
in which case he will get the surplus computed from the
difference to what he already received.
The Complement for
Consort in Charge [27] is a mensal subsidy - of 4,400 PTE at present -
bound for compensation of those who have the consort at their
expense. To benefit from this subsidy the income of the
consort must not be over the amount of the complement.
Future
developments
Thinking of legislative renewal, when bearing
in mind the huge weight of the economical constrictions that
cannot be kept apart, it is hard to foresee important changes
if any at all. As a matter of the fact, if something is
expected to change, it probably will be in terms of actual
implementation and widespread of programmes such as the
Integrated Programme for the Support of Old People [28,
29, 30] and other
dispositions that already exist, here included the inevitable
surveillance auditing measures. We are lead to think of it
while considering the greatest part of the situations
involving old age assistance, for this scenery has been
insistently denounced as calamitous and inhuman, and
frequently even as hurt by illegality. Be it in health forums
[31,
32], in the media [33, 34,
35], but also by consumer defence organisations as well [36,
37, 38] and even by the
competent official organism of justice promotion.
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Última actualização =
06/Abril/97 |
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Alzheimer's Disease in
Europe |
Developing Policy &
Practice
RECOMMENDATIONS
The
number of elderly people with dementia and in particular
Alzheimer's disease (AD) looks set to double by the
middle of the 21st century. Experts therefore
highlight the importance of now considering the
proactive management of people with Alzheimer's disease
and the levels of support their carers will need in the
future.
Professor Brian Lawlor, Consultant Psychiatrist
from St Patrick's Hospital, Dublin, presenting findings
of the EU funded ETAS study (March 1998), the first ever
review of dementia care, services and policy, across 15
European member countries, said: "When dealing
with dementia, health professionals often take a
nihilistic view and believe that identifying the disease
and informing the patient and family will only aggravate
the problem. Hopefully, the advent of new treatments
should foster the development of a more positive
approach to assessment and diagnosis and improve all
care options for patients and their families".
"People with Alzheimer's disease need to be
identified, diagnosed and treated at an early stage by
trained specialists so that the level of care given to
them is as sophisticated as it is in other areas of
medicine. Due to a number of factors this is currently
not happening" said Professor Morton Warner, of the
Welsh Institute of Health and Social Care, who also
presented at the conference.
"Based on the findings of the European review,
recommendations can be made regarding the direction and
strategies that could be adopted in individual countries
and across Europe to achieve more equitable standards of
practice for dementia sufferers and their carers".
The
major challenges associated with improving the care of
dementia patients across Europe have been identified in
the ETAS study. These
include
(1) the need to improve assessment and diagnosis
procedures in general practice,
(2) filling the gaps in support services for
sufferers and carers, (3) addressing the shortage
of specialist doctors in the area and
(4) the need for doctors to have access
to evidence of best practice in other
countries. |
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